Tuesday, August 11, 2009

Back to NIH Tomorrow

A little change in plans. The bone marrow biopsy was moved up to tomorrow (Wed. 8/12) and because we decided not to go away with our kids to LBI next week (Jim is afraid to go so far away from his doctors), the new date for CT scans and clinic appointment is going to be Thursday, Aug. 20. We should be getting an update of Jim's progress on that date. Naturally we're hoping that he is in remission, but that mysterious low neutrophil count is nagging away at us. I went to a support group for caregivers of patients with Cancer last night with Erin (her idea) and found it very helpful. I was amazed at how many people are facing the same issues as we are and how hard it is. Jim only had one hour of sleep last night so I've hired Tsega, the Home Health Aide, back for tonight. Also, Dr. Roath, whom we saw today, explained that his body is getting used to the Lunesta that he takes to help him sleep at night. Therefore he has to skip it one night every week to allow it to get a "kick start" again. He will be taking Melatonin tonight--don't know if it will do anything, but worth a try. Happy dreams you all! Barbara
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4 comments:

  1. AnonymousAugust 11, 2009 at 7:46 PM

    ...and happy dreams to you as well...will be thinking of you tomorrow as you go for the latest test...good thoughts go with you...Love and prayers,Joanne and Sam

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  2. AnonymousAugust 12, 2009 at 7:29 PM

    Hoping and praying for a positive outcome of tests tomorrow. Hoping to see you on Friday. Love, Carol and Fred

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  3. AnonymousAugust 14, 2009 at 5:10 PM

    Sending long distance love, hugs, and prayers. Here''s hoping for sleepy nights and happy days. Loving you both, Susan and John

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  4. AnonymousAugust 16, 2009 at 12:02 PM

    Dear Barbara and Jim,
    Jim, we are glad that the bone marrow biopsy is behind you, although Barb says you do well with that doctor you had. Great! It was wonderful to be there with both of you for a few days- and we are so very much appreciated Alyssa being able to stay with Erin and the girls! We had a busy rest of the week up in N.J. visiting all the relatives. Arrived home in Houston late last night and now will be busy getting ready for school to start next week. We are saying lots of prayers for good news on Thursday. Hope the new regimen of the Lunesta 6 nights and Melatonin one night a week is working! We send many prayers ,hugs and kisses your way!
    WITH LOVE,
    Jeanne, Frank and Alyssa

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